“Do Diagnosis Help or Hurt? A Personal Take”
“Do Diagnosis Help or Hurt? A Personal Take”
Hey everyone!
I hope you’re all well and had an amazing weekend. It’s been a bit too hot for my liking lately—I’ve really struggled with the heat this past week!
Today, I want to talk about something that means a lot to me: diagnosis—and whether or not they’re helpful.
You see, I’ve been diagnosed with a few things over the years, and I’ve seen both the good and the not-so-good sides of it. I’ve also noticed more professionals talking about whether diagnosing someone actually helps—or if it can sometimes do more harm than good, especially without proper support in place.
If you’re a professional and have thoughts on this, I’d really love to hear from you.
My Experience with Diagnosis
Back in 2006, when I was 18, I was diagnosed with a serious mental health condition—mild schizophrenia. And honestly? That diagnosis went straight to my head. I didn’t fully understand what it meant, and I ended up using it as a reason for everything that went wrong in my life. I had no support from services and was basically left to my own devices. In that case, I do think the diagnosis caused more harm than good—because giving someone a label without any tools or support to manage it can be dangerous.
Fast forward to 2018—I had what the psychiatrist called a psychotic breakdown. After reassessment, I was told I didn’t have schizophrenia at all. My actual diagnosis was EUPD (Emotionally Unstable Personality Disorder), also known as BPD. This time, though, I was given a bit of support and placed on a course to help me understand my condition.
That was a game changer. I finally learned to live with my diagnosis—not as my diagnosis. That shift in thinking really helped, and I’m actually grateful for it now. It helped me stop blaming everything on a label and instead start taking steps forward.
A New Understanding: Autism Diagnosis
More recently, I’ve also been diagnosed with Autism. This one was a big learning curve for me too—but it answered so many questions. It helped me understand why I was the way I was growing up and why certain things always felt a bit off or different. I wish I’d known sooner.
I’ve heard people say things like, “You never used to hear about this many kids getting diagnosed,” or “Why are so many adults being diagnosed late?” When I was in college, I was told it was easier to get diagnosed if you were in university—but who knows if that was actually true?
My thought is that we’re only now starting to talk about these things more openly. Even so, it’s still not talked about enough. There’s still stigma and misunderstanding, especially when it comes to autism and other neurological conditions.
So… Are Diagnoses Helpful?
Here’s my take: A diagnosis—on its own—is just a label.
But a diagnosis with the right support in place? That can be life-changing.
It can give someone understanding, tools, community, and direction. It can explain years of confusion. But without support, it can leave someone feeling stuck, labelled, and alone.
Everyone’s different. We’re all unique. And whether or not a diagnosis is helpful really depends on how it’s handled—by professionals, services, and the person themselves.
If you’re a professional and have thoughts on this topic, I’d love to hear your view. And if you know someone who might be interested in this blog, feel free to share it with them.
Thanks for reading, and I hope you all have an amazing week ahead.
See you in the next one!
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3 Responses
Thanks for taking the time to share your thoughts. I enjoyed reading this and totally agree lots , mostly, everyone is different and has different experiences.
I have meet kids and adults who have , what I would deem, behaved badly and hear either them or there parents make excuses for them saying “they can’t help it they have been diagnosed with…” I often draw the conclusion that they are hiding behind there diagnosis. As a child I was assed and confirmed to have dyslexia. I was always told that this ment I had to work harder and spend more time to reach the same standard in education. It was never allowed to be a reason for not doing as well as others. I might be neglecting to appreciate the difficulties others experience, I’m happy to criticise that I have taken a to simplified view.
When I first went to the doctor for support with my mental health, I was put on medication and I was referred to counselling. I had (have) depression but it was not until the end of my section set of counciling sessions that the therapist made a comment about me living with depression. Prio to this injustice thought I was struggling with life. I felt like I was failing , not someone who was ill. For me, I feel an earlier diagnosis, if it came with an explanation as to what this ment and how to make adjustments and develop coping strategies would have helped me to start to recover sooner .
We are not our diagnosis but we do have to learn to live with them. Knowing more about them would make that easier.
Hey Charlie thanks for taking the time to comment on my blog and read it I’m very grateful I totally see where your comming from and agree with you
Dear John
In the UK’s evolved communities, yes they help.
Where community evolution has not evolved the same as UK, no they may hurt. Depends on how established the countries safety net is.
These two comments are opinion.
To have the safety net enabled in UK a diagnosis helps with disability. However, it might also make a vulnerable person more visible.
Visibility may also occur through usage of social media.
Are we trying to hide as disabled people? Only if the community we live in targets us unnecessarily.
No. We are claiming a spot in the community for us, as people who can heal with knowledge not available to people without lived experience.
Our experiences do not necessarily define a person. How you use the knowledge gained from your experiences is possibly what defines you, and also how you intend to use them to make healing decisions in the future. So you are planning and defining your own holistic path.
If your experiences are bad how are you going to heal if you do not use that knowledge to heal?
I am Schizophrenic and ASD diagnosed. My experiences have not all been bad, some have been.
My lived experience knowledge is long and learned.
I continue to learn and share some of the knowledge.
I like the image I have used it before. I do not believe in luck. It is not naturally occurring, in my opinion. I think it is manufactured. This image backs up the thought that good things happen to good people.
KR
David
aka hkdave95